PhD thesis print proof! Checking the print proof of my PhD thesis makes me very happy! Huge thanks to supervisors supreme Bas Bloem, Maria Hägglund, Martijn de Groot! I am looking forward to my thesis defence on 25 March 2022. Sign up for updates: https://www.riggare.se/updates-on-phd-thesis-and-defence/
Category: In English
Draft version of the “spetspatient” framework
Authors: Sara Riggare, Therese Scott Duncan, Maria Hägglund. Introduction In the Merriam-Webster dictionary, ‘advocacy’ is defined as: “the act or process of supporting a cause or proposal”. The same source defines ‘activism’ as: “a doctrine or practice that emphasizes direct vigorous action especially in support of or opposition to one side of a controversial issue”.…… Continue reading Draft version of the “spetspatient” framework
Tracking of COVID-19
Edit on 16 December 2020: I am now almost back to “normal” (whatever normal is when living with a progressive illness…). Looking forward to relaxing over the holidays. Tracking has probably never been more talked about than right now, during an ongoing global pandemic. Having an interest in self-tracking, I have of course followed the…… Continue reading Tracking of COVID-19
PhD trajectory update
I figured that an update on my PhD trajectory was in order so here goes: My application to defend my PhD thesis, ready to be handed in. First a recap: I started my PhD studies at Karolinska Institutet (KI) in 2012 and in June 2018 I handed in my application to defend my PhD thesis…… Continue reading PhD trajectory update
“But Sara…”
“But Sara, why would patients want to do research on themselves anyway? Isn’t it better if you all just give your data to a proper researcher?” I think that those who know me will agree that I am not often lost for words. However, when the question above was posed to me, I can definitely…… Continue reading “But Sara…”
Some key aspects of patient-centered research
It is a truth universally acknowledged that many patients no longer settle for contributing to medical research only as participants in research studies. Over the last decade or so, patients have increasingly made their voices heard in all nooks and crannies of the research process. Some of my favourite examples include: Tom Isaacs, who was…… Continue reading Some key aspects of patient-centered research
What is a ‘spetspatient’?
My non-Swedish speaking friends may have been wondering what I have been up to lately. And it’s a fair question, since I haven’t been blogging much in English for a while. For the last two years or so, I have been leading a project aiming to change the perception of patients, both among healthcare professionals…… Continue reading What is a ‘spetspatient’?
Årets medicinsvensk 2018 / Swede of the year in medicine 2018
Jag utsågs av nyhetsmagasinet Fokus i januari 2019 till årets medicinsvensk 2018 med följande motivering: Att vara patient kan vara detsamma som att känna sig maktlös. Men så behöver det inte vara. Årets medicinsvensk är civilingenjör i kemi och doktorand i hälsoinformatik. Hon använder sin kunskap för att sätta makt i händerna på patienter, inklusive sig…… Continue reading Årets medicinsvensk 2018 / Swede of the year in medicine 2018
Walking revolutionised
Tuesday last week, I got myself a new friend. I have namned him Potemkin and you can see him in the photo here, being examined by another good friend of mine, Shiva the cat. We had no idea what a suitable name we gave him, he really is a “god of destruction”. Just come to…… Continue reading Walking revolutionised
Ethics and PhD
Background A few days ago I had some disappointing news. I have been working on my PhD in the area of digital selfcare and self-tracking in Parkinson’s disease since 2012, which is probably starting to be a bit too long. I was therefore very happy to be able to submit my application to defend my…… Continue reading Ethics and PhD