Categories
Featured In English

“Liberté, égalité, santé!”

Life in 18th century France was probably far from easy, although less difficult for some. The aristocracy were living relatively comfortable lives, where the very small minority were enjoying privileges that the large masses could only dream of. In fact, they couldn’t even dream there was such privileges. And we all remember the allegedly immortal […]

Categories
Featured In English

Healthcare or health?

A google search for “What is health?” just resulted in approximately 23 200 000 hits and I think that the number of different answers to the question is far greater still. The quote to the left is one of my favourite phrases about health and it is by the American 19th century author, poet, philosopher […]

Categories
Featured In English

We need a “Copernican Revolution” in healthcare!

I share my birthday with someone very famous, I would say that almost everybody in the world know his name. At least we all know his work or rather, the result of his work. Nicolaus Copernicus was born 498 years ahead of me, to the day, and of course his work fundamentally changed the way […]

Categories
Featured In English

What is the currency in health?

The question of value is an intriguing one. What do we value? Are people judged based on their abilities: the man who were strongest were made (or made himself) the leader of the tribe? Or is a man’s value to a larger extent based on his possessions: the man with the largest number of belongings […]

Categories
Featured In English

Patient engagement?????

One of my favorite films of all times is called “The Princess Bride”, a sort of “Errol-Flynn-goes-Monty-Python” experience and if you haven’t seen it, I strongly recommend you doing so. One of the film’s villains frequently says “Inconceivable!” and finally his twice-as-large and half-as-smart sidekick interjects: “You use that expression a lot. I don’t think […]

Categories
Featured In English

Tokenism or talent?

Being an engaged and knowledgeable patient has a lot of benefits. On a personal level, knowing as much as I possibly can about my condition, about symptoms, medications, side effects, treatments, research and more, gives me more control of the situation, increases my possibilities to keep the progression of the disease at bay or at least […]

Categories
Featured In English

Perception part 2

Perception is a strange thing. After my diagnosis of generalized dystonia on the 6th of November 1989, I tried as best I could to not be different to anyone else, to not acknowledge the disease that the neurologist had told me that I had. This proved quite a challenge, since I moved slowly at times, and […]

Categories
Featured In English

Perception part 1

When a person is diagnosed with a serious disease, something happens. Maybe not instantly, but most often the words “You have X”, where “X” can range from diabetes over cancer to ALS, triggers a reaction leading to a reevaluation of your life as you knew it. I saw a neurologist for the first time in […]

Categories
Featured In English

Healthcare vs Selfcare

I am a doctoral student at a medical university, but I am also a patient. What does the concept “patient” really mean? When is a person a “patient” and when is he/she something else? The word “patient” is derived from the Latin word “patiens” and the original meaning is “one who suffers”. In the current version, […]

Categories
Featured In English

My mission is NOT to improve healthcare…

My mission is not to improve healthcare… no, it’s not a typo… keep reading… And now that I have your attention, I will start over: My mission is not to improve healthcare, however if I succeed in my mission, healthcare will be improved in the process. In my experience, a period of frustration and hardship […]