Comments for Sara

Comment on Tokenism or talent? by SaraRiggare

SaraRiggare — Sun, 03 Mar 2013 07:59:40 +0000

Thanks Cristin for your insightful comment! And that’s a very good indicator. However, there are examples of late engagement that still can lead to true change. But of course, in search of true patient talent, the engagement should start as early as possible.

Does maybe the Society for Participatory Medicine have guidelines for patient engagement?

Comment on Tokenism or talent? by Cristin Lind

Cristin Lind — Sat, 02 Mar 2013 23:07:27 +0000

Great post! And not just because you quote me quoting some other brilliant person.

There’s so much to say here. Tokenism exists in so many forms. My new litmus test is to ask: at what point in this process were patients asked to “engage”? Was it at the very beginning, i.e. did this idea come from a patient or a patient and provider together? Were they part of the planning committee? Was it after that, in implementation–after the agenda was set and the questions were determined, or when the approach was developed? Or was it only in evaluation that patients were asked for their expertise?

Design – Planning – Implementation – Evaluation. The later the patients come in, the higher the chance of tokenism.

Comment on Healthcare vs Selfcare by SaraRiggare

SaraRiggare — Fri, 15 Feb 2013 20:51:08 +0000

Henrik, not silly at all! Humans are naturally lazy, if someone else tells us that they will take care of things for us, and we trust them enough to feel comfortable, we gladly resign the responsibility… But we have A LOT to gain from being more active!
(Apologies for not responding sooner…)

Comment on Healthcare vs Selfcare by SaraRiggare

SaraRiggare — Fri, 15 Feb 2013 20:41:18 +0000

Thank you debbie for your comment and please forgive me for reacting unreasonably late to your post! I also want to fill in that for people getting diagnosed with PD at age 40 or 50, quality of life can also be to be able to have an optimal treatment to be able to work as long as possible.

Comment on Quantifying freezing-of-gait by John Airaksinen

John Airaksinen — Thu, 31 Jan 2013 10:09:00 +0000

Wow, this will be interesting to follow!

Comment on Healthcare vs Selfcare by Henrik Ahlen

Henrik Ahlen — Sun, 21 Oct 2012 17:36:20 +0000

This is brilliant! Not only because it puts the health care sector’s importance in the life of their patients in perspective. But also also because it illustrates the importance encouraging the patients to engage themselves much more into their own treatment and well-being. This sounds silly, but too many of us are fostered to think that our health is the responsibility of our doctor.

Comment on Healthcare vs Selfcare by debbie

debbie — Sun, 21 Oct 2012 13:36:38 +0000

what a truly wise way of looking at disease. If we only spent another fraction of a circle in our lives in being patients, the problem would be solved…When will our health care providers realize this and change the policies so that people with parkinsons can spend the quality of their life being with the ones they love rather than spending the last few productive years working so they can retire at 65.

Comment on My mission is NOT to improve healthcare… by Per Sjoholm

Per Sjoholm — Thu, 27 Sep 2012 07:19:36 +0000

I’m in.

Comment on Balancing or not? by Per Sjoholm

Per Sjoholm — Thu, 27 Sep 2012 07:14:39 +0000

You may find that being in balance is an illusion.
It’s rather the process or acct of balancing that interesting. Feedback is essential. Knowledge enable us to use feedback more efficient.
Feedback also helps in orientation and navigation, they are cornerstones in performing step wise changes.

Comment on My mission is NOT to improve healthcare… by SaraRiggare

SaraRiggare — Fri, 21 Sep 2012 21:17:19 +0000

Hi Penny! Thanks!