- 2013.04
- What do you want to know about Parkinson's disease?
Is there something you want to know about Parkinson's disease (PD)? Maybe you are newly d ...
28 Apr 2013
- 2013.03
- Tokenism or talent?
Being an engaged and knowledgeable patient has a lot of benefits. On a personal level, kno ...
2 Mar 2013
- 2013.02
- 7e Patientsäkerhetskonferensen 29 januari 2013
Foto från @StefanJutterdal:s twitterström. Jag hade glädjen och äran att medverka vid ...
3 Feb 2013
- 2013.01
- Quantifying freezing-of-gait
These are my feet, they have been with me for 42 years soon and they mostly serve me well. ...
31 Jan 2013
- 2012.12
- Health IT and security issues
For someone who has actually studied health informatics, I don't blog as much about health ...
16 Dec 2012
- 2012.11
- Perception part 2
Perception is a strange thing. After my diagnosis of generalized dystonia on the 6th of ...
19 Nov 2012
- Perception part 1
When a person is diagnosed with a serious disease, something happens. Maybe not instantly, ...
18 Nov 2012
- 2012.10
- Healthcare vs Selfcare
I am a doctoral student at a medical university, but I am also a patient. What does th ...
20 Oct 2012
- Free on-line consultation with a Parkinson's specialist
A few weeks ago, I was introduced to Ray Dorsey (photo) via an email. Ray is an MD and ...
14 Oct 2012
- 2012.09
- My mission is NOT to improve healthcare...
My mission is not to improve healthcare... no, it's not a typo... keep reading... And n ...
21 Sep 2012
- Balancing or not?
I find it very difficult to find the right balance. The problem is of course, that balance ...
19 Sep 2012
- 2012.07
- Seminarium om patientmakt i Almedalen 4 juli 2012
Jag hade nöjet att få vara med och diskutera Patientmakt under ett seminarium med presenta ...
11 Jul 2012
- Always a patient?
The first week of July every year is a very special week on the magical island of Gotland, ...
2 Jul 2012
- 2012.06
- MyOwnPROMs
This poster was presented at the 10th anniversary conference of Medical Management Center ...
19 Jun 2012
- "From Ideas to Health" - presentation from KI on 30th of May
On the 30th of May, my main PhD supervisor, professor Staffan Lindblad and I gave a joint ...
11 Jun 2012
- Learning through observations
When I was diagnosed with Parkinson’s at the age of 32, I was of course devastated. I had ...
10 Jun 2012
- What is the outcome of healthcare?
As a person living with a chronic disease, I am very grateful to healthcare. I would not b ...
3 Jun 2012
- 2012.05
- Health is about responsibility
Health is about responsibility. I am not sure of the situation in other countries, but in ...
12 May 2012
- Method description
To evaluate the effects of my medications, I use an app on my iPhone. I don't have the tr ...
7 May 2012
- Very preliminary analysis after two days on new dose
Thank you Zalamanda and Marten, for your comments on my previous post. Of course, I agree ...
7 May 2012
- Results after two days on my new dose
I have compiled the measurements during these last two days, see below. Compared with my b ...
6 May 2012
- New dose day 2
The first day on the tweaked dose went OK, no fantastic change, but I didn't expect that e ...
6 May 2012
- New dose day 1
These last few days have made me even more aware of how extremely dependent I am of my med ...
5 May 2012
- I need a change, I really need a change
I have found myself really struggling for quite some time now. Struggling to move smoothly ...
4 May 2012
- 2012.04
- Is Parkinson's Contagious?
Another recycled blog post, this one was originally written in May 2010. The apple of my ...
22 Apr 2012
- On a Tightrope - Life is a Balance!
This is the very first blog post I wrote in English, first published in April-May 2010. W ...
21 Apr 2012
- 2012.03
- PD Quantified Challenge - end of day 3
Results from my first day of evaluating myself can be found in the graph below and the nex ...
12 Mar 2012
- The PD challenge, day 3 - add an app or two
Hmmm... I have realized that the Wii balance exercise/monitoring doesn't give me quite the ...
12 Mar 2012
- PD-Wii Fit Plus Challenge - day 2
Day 2 of my challenge and I realized that the registering of the results has to be altered ...
11 Mar 2012
- My PD-Wii Fit Plus Challenge
Today I am starting a new project: My PD-Wii Fit Plus Challenge. The idea is to investigat ...
10 Mar 2012
10 Mar 2012
- Long time, no posting...
It's been a number of very busy weeks... to say the least... I now feel like I am through ...
9 Mar 2012
- 2012.01
- Dagens Medicins ST-läkardagar 2012-01-26
Min dag gick i föredragens tecken, eftermiddagen tillbringade jag på Filmstaden Sergel där ...
26 Jan 2012
- Registerdagen 2012 - Svensk Reumatologisk Förening
Jag hade idag nöjet att prata på Svensk Reumatologisk Förenings Registerdag 2012 tillsamma ...
26 Jan 2012
- 2011.12
- Anniversary by Social Media and Health 2.0
One year ago today I met a man. We have so much in common, we share the same values, we ha ...
4 Dec 2011
- When a patient turns researcher
Thursday last I was invited to speak at the yearly conference for the association of Swedi ...
4 Dec 2011
- 2011.11
- My slides from QS2011 Amsterdam
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29 Nov 2011
- Sharing is contagious caring, second day at QS2011 Amsterdam
Getting close to the end of the second and last day of QS2011 Amsterdam and it has been tr ...
27 Nov 2011
- First day of QS Europe 2011 in Amsterdam
My first ever day at an unconference and the impressions have been numerous. I love the id ...
26 Nov 2011
10 Nov 2011
- 2011.10
- Health 2.0 - "The patient joins the team"
Being a student of Health Informatics at the Karolinska Institute has introduced me to a n ...
15 Oct 2011
- 2011.09
- In your face PD!
We all know that excercise is good for us. We do. And those of us with PD know that for u ...
26 Sep 2011