Posts

I think that those who know me will agree that I am not often lost for words. However, wh ...

It is a truth universally acknowledged that many patients no longer settle for contributin ...

Amerikanska PatientsLikeMe (PLM) är, enligt dem själva, världens största personliga hälson ...

The report "Spetspatienter - en ny resurs för hälsa" (only in Swedish I'm afraid) My n ...

Foto: Per Riggare Jag utsågs av nyhetsmagasinet Fokus i januari 2019 till årets medici ...

Rapporten "Spetspatienter - en ny resurs för hälsa" Igår var en stor dag: projektet "S ...

My new friend Potemkin meets my furry friend Shiva Tuesday last week, I got myself a n ...

Jag brukar le inombords (det syns nog även ofta utifrån) när jag ser hur många tappar ...

Background A few days ago I had some disappointing news. I have been working on my PhD ...

  Vårdmaktpodden med och av Tobias Perdahl Inspirerad av att just ha lyssnat ...

Sara och hennes personliga tränare Antoine Constantinedes. Fotograf: Martin Stenmark. Ur ...

One of my containers for my morning doses with one morning dose laid out. Every mornin ...

Today I learnt that Tom Isaacs, President and co-founder of the Cure Parkinson's Trust die ...

https://www.youtube.com/watch?v=HygHkOmCQmU

Som mångårig kronikerpatient har jag ett väldigt stort personligt intresse att vården fung ...

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Kent Unruh: https://youtu.be/0MqinxVAYWU Jasmine Sturr, Full version: https://you ...

Before my Parkinson's had evolved into the kind with "freezing-of-gait", or FOG for short, ...

Last week was a week of contrasts for me. On Tuesday I left Stockholm for New York City an ...

My extra dopamine - on my left arm I'm sure most of you have seen me write once or twi ...

It was my birthday last Friday, on the 19th of February. This year I turned 45 and was hon ...

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I owe a lot to research. Thanks to an immense number of dedicated researchers, I have acc ...

Under en helg i november 2015 var Stockholm platsen för ett nytt (för Sverige) och innovat ...

On a weekend in November 2015, Stockholm was the scene for the start of a novel (for Swede ...

Personal View published in BMJ (http://www.bmj.com/content/351/bmj.h6318): "Patients orga ...

Image copied from the article "The quantified self Counting every moment", published in T ...

Most people would probably agree that being diagnosed with Parkinson's disease (PD) at age ...

In September I will be attending one of my favourite conferences for the third time: Stanf ...

For the last year or so I've been working in a project funded by the Swedish government's ...

Tomorrow on 2nd of June, I will be sharing my experiences with Parkinson's with Gilles Fry ...

#Parkinsons1day is a project initiated by Roni Zeiger and Gilles Frydman of Smart Pati ...

Parkinson's is a neurodegenerative disease, meaning that it gets worse as time goes by and ...

Life in 18th century France was probably far from easy, although less difficult for some. ...

The general image of Parkinson's disease is probably an old man with hands that are shakin ...

If I could only attend one conference a year, I know exactly which one I would choose: Qua ...

A google search for "What is health?" just resulted in approximately 23 200 000 hits and I ...

Very proud to be one of the people interviewed in this BBC Radio 4 program: http://www. ...

My week at the neurorehabilitation centre CNS in Portugal was fantastic and I can't thank ...

On our 6th day at the centre for neurorehabilitation in Portugal, CNS, it was time for eva ...

Day 1 These last five days at the centre for neurorehabilitation CNS in Portugal have ...

The "internal feedback system" of people with Parkinson's does not function properly. I ha ...

I have been trying to think of an appropriate symbol for Parkinson's and finally I have fo ...

On our way from the airport in Lisbon to the rehabilitation centre  Campus Neurológico Sén ...

Parkinson's is hard work. A friend of mine, on his way to becoming a neurologist, says to ...

Image from the article "The quantified self Counting every moment", The Economist March 3 ...

Motion of Sun, Earth, and Mars according to heliocentrism (left) and to geocentrism (righ ...

This is a fantastic campaign on Medstartr by "The Joan of Arc of e-patients" Casey Quinlan ...

This week I am in Amsterdam for the third Quantified Self Europe conference. I am really   ...

This is an article written by Jon Palfreman for The Journal of Parkinson's disease, publis ...

Bild från http://nkskonferensen.se Det här med patientmedverkan är inte lätt, det vet ...

Fotot kopierat från: http://www.ifl.se/ledande-fragor/   Nu på lördag, den 1/2 ...

In september 2013 I wrote a blog in Swedish fuelled by my frustration over the current sit ...

The end of another year is approaching - always a good time for reflections, evaluations a ...

This is an article I wrote for "On The Move", the magazine of Parkinson's Movement on ...

I have a new friend. She can be seen on the photo here and I picked her up in a shop t ...

De senaste dagarnas gensvar på mina inlägg "Nu får det vara nog!!!" och "Förslag på kontro ...

Jag blev faktiskt lite överraskad av gensvaret på mitt inlägg igår. Visst har jag hört per ...

Helt mot bättre vetande och med dåligt samvete för att min familj återigen ser mig jobba l ...

"De loggar allt i sina liv, från löparrundan till sina hjärnvågor. Möt rörelsen Quantified ...

"Den nya tekniken är på väg att förändra sjukvården och tillvaron för dig som patient. Med ...

You can read about and watch the talk I gave at the conference Quantified Self Europe in A ...

The question of value is an intriguing one. What do we value? Are people judged based ...

"Hello, hello. Anyone there?" (Image copied from: http://healthecommunications. wordpress ...

Being an engaged and knowledgeable patient has a lot of benefits. On a personal level, kno ...

Foto från @StefanJutterdal:s twitterström. Jag hade glädjen och äran att medverka vid ...

These are my feet, they have been with me for 42 years soon and they mostly serve me well. ...

For someone who has actually studied health informatics, I don't blog as much about health ...

Perception is a strange thing. After my diagnosis of generalized dystonia on the 6th of ...

When a person is diagnosed with a serious disease, something happens. Maybe not instantly, ...

I am a doctoral student at a medical university, but I am also a patient. What does th ...

http://www.metro.se/metrojobb/varden-flyttar-ut-pa-natet/EVHljp!blOBJZ7EarRj6/ Vården f ...

A few weeks ago, I was introduced to Ray Dorsey (photo) via an email. Ray is an MD and ...

My mission is not to improve healthcare... no, it's not a typo... keep reading... And n ...

I find it very difficult to find the right balance. The problem is of course, that balance ...

http://itivarden.idg.se/2.2898/1.465013/egna-data-ger-battre-halsa Egna data ger bättre ...

Jag hade nöjet att få vara med och diskutera Patientmakt under ett seminarium med presenta ...

The first week of July every year is a very special week on the magical island of Gotland, ...

This poster was presented at the 10th anniversary conference of Medical Management Center ...

On the 30th of May, my main PhD supervisor, professor Staffan Lindblad and I gave a joint ...

When I was diagnosed with Parkinson’s at the age of 32, I was of course devastated. I had ...

As a person living with a chronic disease, I am very grateful to healthcare. I would not b ...

              Sociala forskare ...

Health is about responsibility. I am not sure of the situation in other countries, but in ...

To evaluate the effects of my medications, I use an app on my iPhone. I don't have the tr ...

Thank you Zalamanda and Marten, for your comments on my previous post. Of course, I agree ...

I have compiled the measurements during these last two days, see below. Compared with my b ...

The first day on the tweaked dose went OK, no fantastic change, but I didn't expect that e ...

These last few days have made me even more aware of how extremely dependent I am of my med ...

I have found myself really struggling for quite some time now. Struggling to move smoothly ...

Another recycled blog post, this one was originally written in May 2010. The apple of my ...

This is the very first blog post I wrote in English, first published in April-May 2010. W ...

http://www.mama.nu/Artiklar/Sara-fick-diagnosen-Parkinsons-sjukdom Sara fick diagnosen ...

Results from my first day of evaluating myself can be found in the graph below and the nex ...

Hmmm... I have realized that the Wii balance exercise/monitoring doesn't give me quite the ...

Day 2 of my challenge and I realized that the registering of the results has to be altered ...

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Today I am starting a new project: My PD-Wii Fit Plus Challenge. The idea is to investigat ...

It's been a number of very busy weeks... to say the least... I now feel like I am through ...

http://www.economist.com/node/21548493 The quantified self: Counting every moment | The ...

Min dag gick i föredragens tecken, eftermiddagen tillbringade jag på Filmstaden Sergel där ...

Jag hade idag nöjet att prata på Svensk Reumatologisk Förenings Registerdag 2012 tillsamma ...

One year ago today I met a man. We have so much in common, we share the same values, we ha ...

Thursday last I was invited to speak at the yearly conference for the association of Swedi ...

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Getting close to the end of the second and last day of QS2011 Amsterdam and it has been tr ...

My first ever day at an unconference and the impressions have been numerous. I love the id ...

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Being a student of Health Informatics at the Karolinska Institute has introduced me to a n ...

We all know that excercise is good for us. We do. And those of us with PD know that for u ...

Although Sweden's national day is on the 6th of June (and incidentally wasn't made a bank ...

Last year I did the the bravest thing I have done in my life. And to me being brave has ve ...

My previous blog ended: "I did not get back to them", and I did not. However, my mother ...

I think I was around 13 years old when I first realised that my body did not function the ...

I don't presume to have a lot of regular readers and probably fewer still will have follow ...

http://www.expressen.se/halsa/parkinson-gar-att-leva-med/ Parkinson går att leva med | ...

Have you heard the story of the Three Princes of Serendip? Serendip is Persian name for Sr ...

Today is the 24th of December and in Sweden this is the day we celebrate Christmas. I know ...

When I was first given my Parkinson’s diagnosis, my world shattered… Our daughter was 9 mo ...

As someone who has loved the stories about the underdog wizard from the first time I heard ...

 By first glance, Glasgow might seem like just another city anywhere in the world, with it ...

My journey to the World Parkinson’s Congress in Glasgow could definitely have had a better ...

I know a lot of people with Parkinson’s when newly diagnosed (and also later) don’t want t ...

I consider myself very lucky for a lot of reasons. To name them all would take up more spa ...

The apple of my eye is a 4 ft tall, 45 lbs creature with brown-green eyes and blonde hair, ...

Parkinson’s is an incurable chronic neurodegenerative disease. None of these words is even ...

When I was 13 or 14 years old I realised that my body wouldn’t always do what I asked of i ...