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Podcast in English

Webinar: PMD Alliance: “Disrupting the System”

On April 23 2021 I participated in a webinar organised be PMD Alliance titled “Disrupting the System: How Patients are Changing Research & Healthcare wHolistic™”. The webinar was presented in this way: “I see my neurologist twice a year, about half an hour every time. That’s one hour per year in healthcare for my Parkinson’s disease. During […]

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Presentations in English

Webinar: Chalmers Engineering Health

Presentation with Andreas Hellström: “Patient researchers and patient innovators – the missing link?”  link to video (our presentation starts at 2hrs57mins)

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Podcast på svenska

I samtal med Bodil Jönsson

I detta poddavsnitt lett av Jonas Fagerson pratar Bodil Jönsson om den bok vi båda medverkar i: Tillsammans för en god och nära vård. Läs även här och här.

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In English

Draft version of the “spetspatient” framework

Authors: Sara Riggare, Therese Scott Duncan, Maria Hägglund. Introduction In the Merriam-Webster dictionary, ‘advocacy’ is defined as: “the act or process of supporting a cause or proposal”. The same source defines ‘activism’ as: “a doctrine or practice that emphasizes direct vigorous action especially in support of or opposition to one side of a controversial issue”. […]

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In English Self-tracking

Tracking of COVID-19

Edit on 16 December 2020: I am now almost back to “normal” (whatever normal is when living with a progressive illness…). Looking forward to relaxing over the holidays. Tracking has probably never been more talked about than right now, during an ongoing global pandemic. Having an interest in self-tracking, I have of course followed the […]

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Podcast på svenska

Medverkan i podden: “Runt hörnet”

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Podcast på svenska

Medverkan i podd om Alzheimer

Jag gästade Henrik Frenkels podd. Läs mer här.

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In English

PhD trajectory update

I figured that an update on my PhD trajectory was in order so here goes:

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Podcast in English

Personal science conversations

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Podcast på svenska

Medverkan i näravårdpodden