Travels with Parky

This is an article I wrote for “On The Move”, the magazine of Parkinson’s Movement on my experiences when travelling to the World Parkinson Congress in Montreal earlier this year. In the magazine, the article had to be slightly edited to fit the space available, but this is the “uncut” version 🙂 .   When…… Continue reading Travels with Parky

Presentation at QSEU 2013

You can read about and watch the talk I gave at the conference Quantified Self Europe in Amsterdam in May 2013 below. http://quantifiedself.com/2013/06/caspar-addyman-and-sara-riggare-on-tracking-parkinsons/  https://vimeo.com/68600543

Quantifying freezing-of-gait

These are my feet, they have been with me for 42 years soon and they mostly serve me well. However, recently I have noticed an increasing tendency to get freezing-of-gait, an annoying effect of my “flavor” of Parkinson’s disease. For some more information on what freezing-of-gait, watch this film: http://www.youtube.com/watch?v=aaY3gz5tJSk. Although the case in the film…… Continue reading Quantifying freezing-of-gait

Method description

To evaluate the effects of my medications, I use an app on my iPhone. I don’t have the tremor that most people (including myself) associate with Parkinson’s, but instead I have bradykinesia (slowness of movement) and rigidity with a bit of balance and gait problems, just to make it more interesting.   I did know…… Continue reading Method description

Very preliminary analysis after two days on new dose

Thank you Zalamanda and Marten, for your comments on my previous post. Of course, I agree with both of you, two days is far too short a time to expect any kind of significant results. Nevertheless, I did observe some potentially interesting findings in these two days. The first graph shows the measurements i did on my very…… Continue reading Very preliminary analysis after two days on new dose

Results after two days on my new dose

I have compiled the measurements during these last two days, see below. Compared with my base line measurements, they look very random and I will attempt some sort of analysis tomorrow.

New dose day 2

The first day on the tweaked dose went OK, no fantastic change, but I didn’t expect that either. Let me try explaining in some more detail, how the different Parkinson’s medication works. Remember the different types of Parkinson’s medication I mentioned yesterday? Let’s call the levo-dopa based medication type A. Further, let’s call the kind…… Continue reading New dose day 2

New dose day 1

These last few days have made me even more aware of how extremely dependent I am of my medications, and if you’re reading this and have Parkinson’s yourself, this is probably very much old news. For people who have not experienced this, I completely understand that this is difficult to understand. Let me quote an…… Continue reading New dose day 1

I need a change, I really need a change

I have found myself really struggling for quite some time now. Struggling to move smoothly, struggling to stay positive, struggling to keep going. And I have realised that it is time to change things. I need to increase my medication. Of course it is a sign that my Parkinson is progressing and of course that insight…… Continue reading I need a change, I really need a change

PD Quantified Challenge – end of day 3

Results from my first day of evaluating myself can be found in the graph below and the next one shows my control (a.k.a. hubby). I found the patterns over time, especially in the finger tapping fascinating. If the results from the first day are anything to go by, the dose-response curve of my medication is…… Continue reading PD Quantified Challenge – end of day 3

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