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List of updates sent:
Update 1, 13th Nov 2021: https://mailchi.mp/182433bbbef2/zb9ll2p3km
PhD thesis “Personal science in Parkinson’s disease – a patient-led research study”
My PhD thesis comprises the following published scientific articles:
- Riggare S, Hägglund M. Precision Medicine in Parkinson’s Disease – Exploring Patient-Initiated Self-Tracking. J Parkinsons Dis. 2018;8(3):441–6, link to article (open access)
- Patient-driven N-of-1 in Parkinson’s Disease. Lessons Learned from a Placebo-controlled Study of the Effect of Nicotine on Dyskinesia. Riggare S, Unruh KT, Sturr J, Domingos J, Stamford JA, Svenningsson P, Hägglund M. Methods of information in medicine. 2017 Oct 24;56(99):e123-e128, link to article (open access)
- Patients are doing it for themselves: A survey on disease-specific knowledge acquisition among people with Parkinson’s disease in Sweden, Riggare S, Höglund Pj, Hvitfeldt Forsberg H, Eftimovska E, Svenningsson P, Hägglund M, Health informatics journal 2017, link to article (open access)
- Riggare S, Duncan TS, Hvitfeldt H, Hägglund M (2019) “You have to know why you’re doing this”: a mixed methods study of the benefits and burdens of self-tracking in Parkinson’s disease. BMC Med. Inform. Decis. Mak. 7, 1–16. Link to article (open access)
- Riggare S (2020) Patient researchers — the missing link? Nat Med 26, (10) 1507. Link to article (view only).
- Riggare S, Hägglund M, Bredenoord AL, de Groot M, Bloem BR (2021) Ethical Aspects of Personal Science for Persons with Parkinson’s Disease: What Happens When Self-Tracking Goes from Selfcare to Publication? J Parkinsons Dis 11, (4) 1927–1933. Link to article (open access).