2018

January:

•  

2017

November:

• Participated in Salzburg Global Seminar session 585: Sciana network , gave a presentation on “The New World of Data – Empowering the Patient”

March:

• Participated in Salzburg Global Seminar session “Toward a Shared Culture of Health: Enriching and Charting the Patient-Clinician Relationship”, see article here: Sara Riggare – “Even Without Being Actively Supported by Health Care, Patients Can Do a Lot for Themselves”  

January:

• Debate in Parkinson’s Life with Tom Isaacs and Jon Stamford: “Are we too focused on the search for a Parkinson’s cure?”

2016

November:

• Medverkade i Vårdmaktpoddens premiäravsnitt (in Swedish)

May:

• Presentation in Oslo together with Jon Stamford: ““Parkinson’s Disease – a glimpse of the past, a look at the present and a vision of the future”. video here

2015

December:

• Personal View published in BMJ: “Patients organise and train doctors to provide better care”
• Gästkrönikör i Vetenskapsrådets nättidning Curie: “Kan patienter vara forskare?” (in Swedish)

November

Medverkande i podcasten Förändringspodden (in Swedish).

September

 

• Participated at Stanford Medicine X Ed and Stanford Medicine X:
  • Workshop titled: “Design Thinking for Chronic Condition Patient Engagement”, together with Dennis Boyle, IDEO, and Ann Lindsay and Alan Glaseroff, Stanford Coordinated Care.
  • Workshop titled: “Is Sweden Creating an IKEA for Health”. Article in English here and Swedish here.
  • Panel discussion with Susannah Fox, Michael Seres and Eli Pollard titled: “Going from Researching Patients to Patients’ Researchers”.

August

• Medverkande i “Kropp och själ” i Sveriges Radio P1: “Doktorn i fickan” (in Swedish).

July

• Interviewed in an article in New Scientist: “Health-hackers: The people building apps to manage their illness”
• Medverkade i ett antal seminarier under Almedalsveckan
  • Dagens Medicins Vårdtorg: “Sjukvårdens nya uppdrag: att möta framtidens patient”, klicka på länken och välj filmen från 1 juli.

June

• Doctoral studies half-time review
• Reportage tillsammans med Ulrika Sandén i Dagens Nyheter (in Swedish):
  • Artikel: “Sjukdomen blev starten på deras forskarkarriär”
  • Film: “Att forska om sin egen sjukdom”

March

• Participated in Salzburg Global Seminars Session 548: “The Promise of Data: Will this Bring a Revolution in Healthcare?”

February 

• Presented at the Nuffield Trust Health Policy Summit: “Patient involvement – What is it good for?” 
  • My presentation: https://vimeo.com/121026802
  • Presentation by professor Bas Bloem, Radboud UMC, NL: https://vimeo.com/121026419
  • Discussion chaired in an excellent way by Jeremy Taylor of Patient Voices: https://vimeo.com/121026803
• I was mentioned as the most influential person in Swedish medtech by Medtech Magazine (in Swedish)
• Guest blogger on The Guardian’s Healthcare Network: “Having Parkinson’s since I was 13 has made me an expert in selfcare”

January

• Participated in the BMJ roundtable debate: “How can we get better at providing patient centred care?” BMJ. Link to podcast here.

2014

1-3 Oct 2014: The 17th European Health Forum Gastein, where I spoke on “Patient leadership, empowerment and technological innovation”  in a session on Public Health Leadership. See my presentation on SlideShare here.

5 Sept 2014: Stanford Medicine X, where I participated in a panel on: “Patient with Chronic Illness – The New Self-Tracker?”. Video will be posted later.

25 June 2014: EHMA (European Health Management Association) Annual Conference in Birmingham, UK: “Leadership in Healthcare: from bedside to board”. I spoke in a plenary session titled “Patient Involvement, the Good, the Bad and the Ugly”, chaired by Prof. Naomi Chambers, Professor of Healthcare Management, Manchester Business School, UK.

Yes, I did open with the theme from the film 🙂 and a pdf of my presentation can be found here.

9-11 May 2014: Attended my favourite conference: Quantified Self Europe in Amsterdam, where I gave a Show&Tell on “How not to fall” and hosted a breakout session on “Self-tracking of neurological diseases”.

2013

27 Sept 2013: I was part of a panel at Stanford Medicine X on “The self-tracking e-patient”, see videos on my talk, an interview by Joyce Ho and the panel discussion here.

25 Sept 2013: Spoke at the Quantified Self Bay Area group meet up, see video here.

May 2013: Quantified Self Europe Amsterdam, where I gave an ignite talk together with Caspar Addyman on “Tracking Parkinson’s”