Posts in grid

Blog posts in a grid, most recent post first.

PhD thesis print proof

Dec 21, 2021 0 Min read
PhD thesis print proof! Checking the print proof of my PhD thesis makes me very happy! Huge thanks to supervisors supreme Bas Bloem, Maria Hägglund, Martijn

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Tracking of COVID-19

Nov 23, 2020 3 Min read
Edit on 16 December 2020: I am now almost back to “normal” (whatever normal is when living with a progressive illness…). Looking forward to relaxing

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“But Sara…”

Jul 23, 2019 7 Min read
“But Sara, why would patients want to do research on themselves anyway? Isn’t it better if you all just give your data to a proper

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Ethics and PhD

Sep 16, 2018 10 Min read
Background A few days ago I had some disappointing news. I have been working on my PhD in the area of digital selfcare and self-tracking in

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What is in a fall?

Aug 29, 2016 2 Min read
Before my Parkinson’s had evolved into the kind with “freezing-of-gait”, or FOG for short, that now is far more familiar than I would like, I

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45 and counting

Feb 21, 2016 3 Min read
It was my birthday last Friday, on the 19th of February. This year I turned 45 and was honoured, grateful and very happy for all

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The Burden of Tracking

Oct 18, 2015 3 Min read
Image copied from the article “The quantified self Counting every moment”, published in The Economist March 3rd 2012 ( I have called

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Oct 13, 2015 2 Min read
Most people would probably agree that being diagnosed with Parkinson’s disease (PD) at age 32 would be a hard blow. It was. I usually describe it as “it

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