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		[{"id":22884,"link":"https:\/\/www.riggare.se\/2026\/04\/03\/chronic-knowledge-the-knowledge-healthcare-cant-see\/","name":"chronic-knowledge-the-knowledge-healthcare-cant-see","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2026\/04\/Uggla.jpg?fit=960%2C642&ssl=1","alt":""},"title":"Chronic Knowledge: The Knowledge Healthcare Can't See","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Apr 3, 2026","dateGMT":"2026-04-02 22:12:13","modifiedDate":"2026-04-11 12:45:23","modifiedDateGMT":"2026-04-11 10:45:23","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/my-research\/\" rel=\"category tag\">My research<\/a>, <a 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rel='post_tag'>selfcare<\/a>"},"readTime":{"min":5,"sec":56},"status":"publish","excerpt":""},{"id":22750,"link":"https:\/\/www.riggare.se\/2026\/02\/16\/four-reasons-for-involving-patients-in-improving-research-plus-the-one-that-matters-most\/","name":"four-reasons-for-involving-patients-in-improving-research-plus-the-one-that-matters-most","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2026\/02\/Skrivmaskin-fragetecken.jpg?fit=1920%2C1283&ssl=1","alt":"Skrivmaskin fr\u00e5getecken"},"title":"Four reasons for involving patients in improving research (plus the one that matters most)","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Feb 16, 2026","dateGMT":"2026-02-16 16:04:09","modifiedDate":"2026-04-11 12:45:33","modifiedDateGMT":"2026-04-11 10:45:33","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/patient-involvement\/' rel='post_tag'>patient involvement<\/a>"},"readTime":{"min":3,"sec":43},"status":"publish","excerpt":""},{"id":22677,"link":"https:\/\/www.riggare.se\/2026\/02\/08\/checklist-and-resources-for-meaningful-engagement-of-patients\/","name":"checklist-and-resources-for-meaningful-engagement-of-patients","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2026\/02\/Checklista.jpg?fit=1920%2C1283&ssl=1","alt":"Checklista"},"title":"Checklist and resources for meaningful engagement of patients","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Feb 8, 2026","dateGMT":"2026-02-08 17:05:10","modifiedDate":"2026-04-11 12:45:43","modifiedDateGMT":"2026-04-11 10:45:43","commentCount":"1","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/experiential-expertise\/' rel='post_tag'>experiential expertise<\/a><a href='https:\/\/www.riggare.se\/tag\/patient-involvement\/' rel='post_tag'>patient involvement<\/a>"},"readTime":{"min":4,"sec":6},"status":"publish","excerpt":""},{"id":22640,"link":"https:\/\/www.riggare.se\/2026\/02\/07\/why-are-patients-the-only-ones-around-the-table-expected-to-work-for-free\/","name":"why-are-patients-the-only-ones-around-the-table-expected-to-work-for-free","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2026\/02\/Pengar-i-burkar-X2.jpg?fit=1920%2C1283&ssl=1","alt":"Mynt i glasburkar"},"title":"Why are patients the only ones around the table expected to work for free?","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Feb 7, 2026","dateGMT":"2026-02-07 09:43:57","modifiedDate":"2026-04-11 12:45:51","modifiedDateGMT":"2026-04-11 10:45:51","commentCount":"3","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/experiential-expertise\/' rel='post_tag'>experiential expertise<\/a><a href='https:\/\/www.riggare.se\/tag\/patient-involvement\/' rel='post_tag'>patient involvement<\/a><a href='https:\/\/www.riggare.se\/tag\/patient-knowledge\/' rel='post_tag'>patient knowledge<\/a><a href='https:\/\/www.riggare.se\/tag\/spetspatient\/' rel='post_tag'>spetspatient<\/a>"},"readTime":{"min":11,"sec":28},"status":"publish","excerpt":""},{"id":22467,"link":"https:\/\/www.riggare.se\/2026\/01\/02\/a-problem-to-be-solved-or-a-life-to-be-lived\/","name":"a-problem-to-be-solved-or-a-life-to-be-lived","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2026\/01\/Untitled-design-2.png?fit=1250%2C625&ssl=1","alt":""},"title":"A problem to be solved or a life to be lived?","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Jan 2, 2026","dateGMT":"2026-01-02 10:28:06","modifiedDate":"2026-04-11 12:46:00","modifiedDateGMT":"2026-04-11 10:46:00","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/disability\/' rel='post_tag'>disability<\/a><a href='https:\/\/www.riggare.se\/tag\/medical-model\/' rel='post_tag'>medical model<\/a><a href='https:\/\/www.riggare.se\/tag\/social-model\/' rel='post_tag'>social model<\/a><a href='https:\/\/www.riggare.se\/tag\/spetspatient\/' rel='post_tag'>spetspatient<\/a>"},"readTime":{"min":5,"sec":28},"status":"publish","excerpt":""},{"id":21931,"link":"https:\/\/www.riggare.se\/2025\/08\/05\/spetspatients-in-the-bmj\/","name":"spetspatients-in-the-bmj","thumbnail":{"url":false,"alt":false},"title":"Spetspatients in the BMJ","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Aug 5, 2025","dateGMT":"2025-08-05 14:31:46","modifiedDate":"2026-04-11 12:39:45","modifiedDateGMT":"2026-04-11 10:39:45","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/in-english\/articles-in-english\/\" rel=\"category tag\">Articles about me in English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/my-research\/\" rel=\"category tag\">My research<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/in-english\/articles-in-english\/\" rel=\"category tag\">Articles about me in English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/my-research\/\" rel=\"category tag\">My research<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/patient-researcher\/' rel='post_tag'>patient researcher<\/a><a href='https:\/\/www.riggare.se\/tag\/spetspatient\/' rel='post_tag'>spetspatient<\/a>"},"readTime":{"min":0,"sec":5},"status":"publish","excerpt":""},{"id":21619,"link":"https:\/\/www.riggare.se\/2025\/05\/20\/a-new-framework-primary-and-secondary-patient-engagement\/","name":"a-new-framework-primary-and-secondary-patient-engagement","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2013\/05\/listen11.jpg?fit=212%2C237&ssl=1","alt":""},"title":"A New Framework: Primary and Secondary Patient Engagement","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"May 20, 2025","dateGMT":"2025-05-20 11:50:16","modifiedDate":"2026-04-11 12:46:13","modifiedDateGMT":"2026-04-11 10:46:13","commentCount":"1","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/experiential-expertise\/' rel='post_tag'>experiential expertise<\/a><a href='https:\/\/www.riggare.se\/tag\/experiential-knowledge\/' rel='post_tag'>experiential knowledge<\/a><a href='https:\/\/www.riggare.se\/tag\/meaningful-engagement\/' rel='post_tag'>meaningful engagement<\/a><a href='https:\/\/www.riggare.se\/tag\/patient-involvement\/' rel='post_tag'>patient involvement<\/a><a href='https:\/\/www.riggare.se\/tag\/spetspatient\/' rel='post_tag'>spetspatient<\/a>"},"readTime":{"min":5,"sec":26},"status":"publish","excerpt":""},{"id":20933,"link":"https:\/\/www.riggare.se\/2025\/02\/08\/managing-medication-in-pd\/","name":"managing-medication-in-pd","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2017\/08\/IMG_6137.jpg?fit=4032%2C3024&ssl=1","alt":""},"title":"Managing medication in PD \u2013 both complex and simple?","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Feb 8, 2025","dateGMT":"2025-02-08 21:43:17","modifiedDate":"2026-04-11 12:46:25","modifiedDateGMT":"2026-04-11 10:46:25","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/self-tracking-2\/\" rel=\"category tag\">Self-tracking<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/self-tracking-2\/\" rel=\"category tag\">Self-tracking<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/experiential-expertise\/' rel='post_tag'>experiential expertise<\/a><a href='https:\/\/www.riggare.se\/tag\/medication\/' rel='post_tag'>medication<\/a><a href='https:\/\/www.riggare.se\/tag\/patient-researcher\/' rel='post_tag'>patient researcher<\/a><a href='https:\/\/www.riggare.se\/tag\/spetspatient\/' rel='post_tag'>spetspatient<\/a>"},"readTime":{"min":6,"sec":21},"status":"publish","excerpt":"Taking medication for Parkinson\u2019s disease (PD) sounds simple: just follow your prescription, take your pills on time, and you\u2019ll be fine. But the reality is far more complicated. I take my meds every three hours just to be able to move, function, and work\u2014but figuring out the right schedule has been a long process of trial and error.\n\nThere is no research comparing different approaches to medication timing, and neurologists rarely ask about the adjustments I make between visits. Yet, those small changes\u2014like shifting a dose by 30 minutes\u2014can make the difference between feeling functional and struggling with symptoms.\n\nDespite its importance, optimizing PD medication is an under-researched field. Why? Complexity, money, and the illusion of simplicity. This post explores why managing Parkinson\u2019s meds is harder than it looks and why PwP are often left to figure it out on their own. Because in the end, it\u2019s not just about taking pills\u2014it\u2019s about living well."},{"id":20231,"link":"https:\/\/www.riggare.se\/2024\/11\/20\/understanding-parkinsons-the-curse-of-knowledge\/","name":"understanding-parkinsons-the-curse-of-knowledge","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2024\/11\/2.png?fit=940%2C788&ssl=1","alt":""},"title":"Understanding Parkinson's: The curse of knowledge","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Nov 20, 2024","dateGMT":"2024-11-20 17:51:45","modifiedDate":"2026-04-11 12:46:34","modifiedDateGMT":"2026-04-11 10:46:34","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/experiential-expertise\/' rel='post_tag'>experiential expertise<\/a><a href='https:\/\/www.riggare.se\/tag\/experiential-knowledge\/' rel='post_tag'>experiential knowledge<\/a><a href='https:\/\/www.riggare.se\/tag\/t1d\/' rel='post_tag'>T1d<\/a>"},"readTime":{"min":2,"sec":17},"status":"publish","excerpt":""},{"id":20137,"link":"https:\/\/www.riggare.se\/2024\/11\/11\/self-experimentation-makes-the-headlines\/","name":"self-experimentation-makes-the-headlines","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2024\/11\/J._Quincy_Medicina_Statica_being_the_aphorisms._Wellcome_L0030962-scaled-e1731429289591.jpg?fit=397%2C640&ssl=1","alt":""},"title":"Patient self-experimentation makes the headlines!","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Nov 11, 2024","dateGMT":"2024-11-11 18:58:21","modifiedDate":"2026-04-11 12:46:45","modifiedDateGMT":"2026-04-11 10:46:45","commentCount":"7","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/scientific-publications\/\" rel=\"category tag\">Scientific publications (my own or others')<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/self-tracking-2\/\" rel=\"category tag\">Self-tracking<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/scientific-publications\/\" rel=\"category tag\">Scientific publications (my own or others')<\/a> <a href=\"https:\/\/www.riggare.se\/category\/self-tracking-2\/\" rel=\"category tag\">Self-tracking<\/a>"},"taxonomies":{"post_tag":"<a 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tag\">My writing In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/self-tracking-2\/\" rel=\"category tag\">Self-tracking<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/in-english\/english\/\" rel=\"category tag\">My writing In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/self-tracking-2\/\" rel=\"category tag\">Self-tracking<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/medication\/' rel='post_tag'>medication<\/a><a href='https:\/\/www.riggare.se\/tag\/patient-researcher\/' rel='post_tag'>patient researcher<\/a><a href='https:\/\/www.riggare.se\/tag\/personal-science\/' rel='post_tag'>personal science<\/a><a href='https:\/\/www.riggare.se\/tag\/quantified-self\/' rel='post_tag'>Quantified 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Hopefully this can contribute to the increasing interest in tracking for PD by adding a bit of nuance to the, often very data- \/research- \/doctor-centric discussions. 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