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08:52:37","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/articles-in-english\/\" rel=\"category tag\">Articles in English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/my-research\/\" rel=\"category tag\">My research<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/articles-in-english\/\" rel=\"category tag\">Articles in English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/my-research\/\" rel=\"category tag\">My research<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/patient-researcher\/' rel='post_tag'>patient researcher<\/a><a href='https:\/\/www.riggare.se\/tag\/spetspatient\/' rel='post_tag'>spetspatient<\/a>"},"readTime":{"min":0,"sec":5},"status":"publish","excerpt":""},{"id":21619,"link":"https:\/\/www.riggare.se\/2025\/05\/20\/a-new-framework-primary-and-secondary-patient-engagement\/","name":"a-new-framework-primary-and-secondary-patient-engagement","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2013\/05\/listen11.jpg?fit=212%2C237&ssl=1","alt":""},"title":"A New Framework: Primary and Secondary Patient Engagement","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"May 20, 2025","dateGMT":"2025-05-20 11:50:16","modifiedDate":"2025-05-20 13:50:16","modifiedDateGMT":"2025-05-20 11:50:16","commentCount":"1","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/experiential-expertise\/' rel='post_tag'>experiential expertise<\/a><a href='https:\/\/www.riggare.se\/tag\/experiential-knowledge\/' rel='post_tag'>experiential knowledge<\/a><a href='https:\/\/www.riggare.se\/tag\/meaningful-engagement\/' rel='post_tag'>meaningful engagement<\/a><a href='https:\/\/www.riggare.se\/tag\/patient-involvement\/' rel='post_tag'>patient involvement<\/a><a href='https:\/\/www.riggare.se\/tag\/spetspatient\/' rel='post_tag'>spetspatient<\/a>"},"readTime":{"min":5,"sec":26},"status":"publish","excerpt":""},{"id":20933,"link":"https:\/\/www.riggare.se\/2025\/02\/08\/managing-medication-in-pd\/","name":"managing-medication-in-pd","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2017\/08\/IMG_6137.jpg?fit=4032%2C3024&ssl=1","alt":""},"title":"Managing medication in PD \u2013 both complex and simple?","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Feb 8, 2025","dateGMT":"2025-02-08 21:43:17","modifiedDate":"2025-02-08 22:43:17","modifiedDateGMT":"2025-02-08 21:43:17","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/self-tracking-2\/\" rel=\"category tag\">Self-tracking<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/self-tracking-2\/\" rel=\"category tag\">Self-tracking<\/a>"},"taxonomies":{"post_tag":"<a href='https:\/\/www.riggare.se\/tag\/experiential-expertise\/' rel='post_tag'>experiential expertise<\/a><a href='https:\/\/www.riggare.se\/tag\/medication\/' rel='post_tag'>medication<\/a><a href='https:\/\/www.riggare.se\/tag\/patient-researcher\/' rel='post_tag'>patient researcher<\/a><a href='https:\/\/www.riggare.se\/tag\/spetspatient\/' rel='post_tag'>spetspatient<\/a>"},"readTime":{"min":6,"sec":21},"status":"publish","excerpt":"Taking medication for Parkinson\u2019s disease (PD) sounds simple: just follow your prescription, take your pills on time, and you\u2019ll be fine. But the reality is far more complicated. I take my meds every three hours just to be able to move, function, and work\u2014but figuring out the right schedule has been a long process of trial and error.\n\nThere is no research comparing different approaches to medication timing, and neurologists rarely ask about the adjustments I make between visits. Yet, those small changes\u2014like shifting a dose by 30 minutes\u2014can make the difference between feeling functional and struggling with symptoms.\n\nDespite its importance, optimizing PD medication is an under-researched field. Why? Complexity, money, and the illusion of simplicity. This post explores why managing Parkinson\u2019s meds is harder than it looks and why PwP are often left to figure it out on their own. Because in the end, it\u2019s not just about taking pills\u2014it\u2019s about living well."},{"id":20231,"link":"https:\/\/www.riggare.se\/2024\/11\/20\/understanding-parkinsons-the-curse-of-knowledge\/","name":"understanding-parkinsons-the-curse-of-knowledge","thumbnail":{"url":"https:\/\/i0.wp.com\/www.riggare.se\/wp-content\/uploads\/2024\/11\/2.png?fit=940%2C788&ssl=1","alt":""},"title":"Understanding Parkinson's: The curse of knowledge","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Nov 20, 2024","dateGMT":"2024-11-20 17:51:45","modifiedDate":"2024-11-20 18:54:23","modifiedDateGMT":"2024-11-20 17:54:23","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a>","space":"<a 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16:07:22","commentCount":"3","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/featured\/\" rel=\"category tag\">Featured<\/a> <a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":3,"sec":52},"status":"publish","excerpt":""},{"id":14523,"link":"https:\/\/www.riggare.se\/2022\/08\/11\/my-5-top-learnings-from-tracking-my-parkinson-for-over-a-decade\/","name":"my-5-top-learnings-from-tracking-my-parkinson-for-over-a-decade","thumbnail":{"url":false,"alt":false},"title":"My 5 top learnings from tracking my Parkinson for over a decade","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Aug 11, 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20:55:30","commentCount":"0","commentStatus":"open","categories":{"coma":"<a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a>, <a href=\"https:\/\/www.riggare.se\/category\/oldies-but-goodies\/\" rel=\"category tag\">Oldies but goodies<\/a>","space":"<a href=\"https:\/\/www.riggare.se\/category\/english\/\" rel=\"category tag\">In English<\/a> <a href=\"https:\/\/www.riggare.se\/category\/oldies-but-goodies\/\" rel=\"category tag\">Oldies but goodies<\/a>"},"taxonomies":{"post_tag":""},"readTime":{"min":2,"sec":21},"status":"publish","excerpt":""},{"id":1844,"link":"https:\/\/www.riggare.se\/2010\/02\/15\/optimistic-realist-with-parkinsons\/","name":"optimistic-realist-with-parkinsons","thumbnail":{"url":false,"alt":false},"title":"Optimistic realist with Parkinson's","postMeta":[],"author":{"name":"SaraRiggare","link":"https:\/\/www.riggare.se\/author\/sarariggare\/"},"date":"Feb 15, 2010","dateGMT":"2010-02-15 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