I felt like I was inside a black hole and thought I would never smile again. However, with a baby in the house, the smiles came back and I started to live again. Slowly but steadily, I was able to understand more about this strange disease and even more importantly, I was able to understand the features of my own particular flavour of Parkinson’s.
Because, as we all know, Parkinson’s is highly individual in nature and my specific combination of symptoms are probably more or less unique to me.
What I found was that by more consciously observing myself and my symptoms and especially the effects my medication had on me, the more I learned about the variations and patterns of my disease. And the more I knew about the variations and patterns of my disease, the more I could understand what made the symptoms worse, what made them less troublesome and how to get through difficult periods when nothing seemed to work.
Almost 10 years have passed since my diagnosis and every day holds challenges due to the disease (and of course also challenges completely unrelated to the disease). Nevertheless, I truly believe that I am in better shape than I have ever been, both physically and psychologically. And maybe it is all self-deception, but who cares as long as it works . I make an effort to see good things in what I experience every day and I am very happy to be able to do all the things I do and all the fantastic people I meet. Of course, not every day is great and of course there are people I wish I had the time to meet more often than I do, but that is no different from most everybody else.
The more I learn and acknowledge my own personal challenges, the more I can take them into account when doing my best to navigate the interesting ocean of life.