I have long since stopped counting the number of tech companies that have contacted me over the years to get me to help with what they are convinced is the app/device/platform/system that millions of persons with Parkinson all around the world are just waiting for. The absolute majority of the tech people were proudly demonstrating…… Continue reading I can’t take yet another solution looking for a problem…
I have more than a decade of experience from tracking my Parkinson’s disease (PD) and I want to share my 5 most important learnings. Hopefully this can contribute to the increasing interest in tracking for PD by adding a bit of nuance to the, often very data- /research- /doctor-centric discussions. Do let me know what you think by commenting on this post!
On this day 10 years ago, March 28th 2012, I was registered as a PhD student at Karolinska Institutet. My research plan, which was going to guide my work over the following years, was titled “Personal observations as a tool for improvements in chronic disease”. Reading through that plan today, on the 10 year anniversary,…… Continue reading On this day 10 years ago…
PhD thesis defence I will defend my thesis on Friday 25 March 2022 at 10:30 am CET at the aula of the Radboud University, Nijmegen. Members of the Doctoral Examination Board are: Jan Kremer, Effy Vayena, Tamar Sharon, Marina Noordegraaf, Sabine Oertelt and Teus van Laar. You can follow the livestream << online here >>.…… Continue reading Personal science day 25 March 2022
A few weeks into the new year and I am happy to announce that my PhD thesis is now available! Below you can find links for downloading, some tips on how to read the thesis, and information about the thesis defence ceremony. Also, don’t miss the chance to ask me questions about my thesis via…… Continue reading My PhD thesis is now available!
Jag medverkar i detta korta inslag i SR Vetenskapsradion med titeln: “Hoppar på ett ben när fötterna inte lyder – parkinsonpatienternas knep”: länk
PhD thesis print proof! Checking the print proof of my PhD thesis makes me very happy! Huge thanks to supervisors supreme Bas Bloem, Maria Hägglund, Martijn de Groot! I am looking forward to my thesis defence on 25 March 2022. Sign up for updates: https://www.riggare.se/updates-on-phd-thesis-and-defence/
On April 23 2021 I participated in a webinar organised be PMD Alliance titled “Disrupting the System: How Patients are Changing Research & Healthcare wHolistic™”. The webinar was presented in this way: “I see my neurologist twice a year, about half an hour every time. That’s one hour per year in healthcare for my Parkinson’s disease. During…… Continue reading Webinar: PMD Alliance: “Disrupting the System”
Presentation with Andreas Hellström: “Patient researchers and patient innovators – the missing link?” https://youtu.be/y_uFmyCqqcE?t=10636 link to video (our presentation starts at 2hrs57mins)