One year ago today I met a man. We have so much in common, we share the same values, we have similar dreams, we have common goals. We met on Twitter, in fact, Twitter suggested me to follow him and his profile definitely caught my eye. I sent him the first email one year ago…… Continue reading Anniversary by Social Media and Health 2.0
Thursday last I was invited to speak at the yearly conference for the association of Swedish physicians (http://www.sls.se/), a 3-day event with literally thousands of visitors: doctors, nurses, etc. I was invited to speak on the topic of patient participation and specifically “What happens when a patient turns researcher on their own disease?”. I told…… Continue reading When a patient turns researcher
Getting close to the end of the second and last day of QS2011 Amsterdam and it has been truly inspirational, extremely intense and a fantastic experience! Today’s highlights from 1/3 of the Stockholm jury: The lunchtime ignite talks were AMAZING! Kees’ way of describing mirroring his twins’ QS experience, Jochen’s talk on how his 40 years-check-up…… Continue reading Sharing is contagious caring, second day at QS2011 Amsterdam
My first ever day at an unconference and the impressions have been numerous. I love the idea of having the focus of the meeting on the breaks between the presentations, since everybody knows that the really sparking ideas are born over a cup of coffee and some strange looking local speciality (in this case I…… Continue reading First day of QS Europe 2011 in Amsterdam
Being a student of Health Informatics at the Karolinska Institute has introduced me to a number of interesting concepts. Already during our very first week in August of last year, we heard about “patient-centered healthcare”, “shared decision-making” and “patients as co-creators of health” and to a highly opinionated and severly inquisitive patient such as myself…… Continue reading Health 2.0 – “The patient joins the team”
We all know that excercise is good for us. We do. And those of us with PD know that for us excercise is more than good, it is essential. Yes, I know, we know it, but we don’t always act upon it. I spent my first 30 odd years actively avoiding every kind of physical…… Continue reading In your face PD!
Although Sweden’s national day is on the 6th of June (and incidentally wasn’t made a bank holiday until 2005…), the true national day of Sweden by any standards must be Midsummer’s eve. On the Friday closest to Summer Solstice everyone in Sweden with their own summer cottage will celebrate the longest day of the year together with…… Continue reading Swedish midsummer
Last year I did the the bravest thing I have done in my life. And to me being brave has very little to do with exposing yourself to all sorts of life-threatening activities such as parachuting or bungee-jumping or even riding a bicycle down a ski slope in Slovakia in the summer (one of my friends has…… Continue reading Being brave