My 5 top learnings from tracking my Parkinson for over a decade

I have more than a decade of experience from tracking my Parkinson’s disease (PD) and I want to share my 5 most important learnings. Hopefully this can contribute to the increasing interest in tracking for PD by adding a bit of nuance to the, often very data- /research- /doctor-centric discussions. Do let me know what you think by commenting on this post!

Video from my thesis defence

Sara Riggare, PhD (Photo by Helena Conning)

https://youtu.be/aLw-ZL8_Xd0

https://youtu.be/aLw-ZL8_Xd0

On this day 10 years ago…

Sara Riggare, PhD (Photo by Helena Conning)

On this day 10 years ago, March 28th 2012, I was registered as a PhD student at Karolinska Institutet. My research plan, which was going to guide my work over the following years, was titled “Personal observations as a tool for improvements in chronic disease”. Reading through that plan today, on the 10 year anniversary,…… Continue reading On this day 10 years ago…

Spetspodden på Vitalis 2019

Under Vitaliskonferensen om ehälsa i Göteborg 2019 lanserade vi Spetspodden – en podcast av, med och om spetspatienter. Här finns länkar till de första avsnitten. https://open.spotify.com/episode/5Sz4Xuw8lSstmvvA2LY8jN?si=0BnqBArATryFyU8W5t3aIg https://open.spotify.com/episode/6BNESQ3oeQJHiSGoIrDSYx?si=_53IGJiWSFuCe92Hhvs7NQ https://open.spotify.com/episode/2lNAvgScXKI2UOCoaA2mqo?si=2-BgcpqKQtGIteUvOuZCvg https://open.spotify.com/episode/3iOUoS2vQgcKvF7PcxsVDL?si=WrInFGlDQN6TQv4MT6hXGQ https://open.spotify.com/episode/3BvGtgkI3JY1xHCfLXrKjj?si=Mhxfmm1jSwSme-RuX2eYTw https://open.spotify.com/episode/0a81A1J8nRaUNzpPFfUpbI?si=d_SofaUnSye4dPNEWeub-A https://open.spotify.com/episode/6WtZ39wAQCCrADHFpRiXTC?si=3iX4z00gRza6vXjDQCBjKg

Quantified Self for Parkinson (at WPC 2016)

Kent Unruh: https://youtu.be/0MqinxVAYWU Jasmine Sturr, Full version: https://youtu.be/06mNUmSEn70 Excerpt: using nicotine vape for managing dyskinesias: https://youtu.be/ELu_Y9BWSfE  

“Doktorn i fickan” – Kropp & Själ i P1

Jag medverkade i P1:s hälsojournalistiska program Kropp & Själ, se beskrivning och länk nedan. Du kan kontrollera din sömn, mäta blodtryck och EKG eller ta reda på lunchens näringsvärde. De senaste åren har marknaden för hälsoappar i mobiltelefonen exploderat. Vad ska vi med den insamlade datan till? Och hur kan vården dra nytta av den…… Continue reading “Doktorn i fickan” – Kropp & Själ i P1

Lena increased her daily “feel-well-time” from three to ten hours

For the last year or so I’ve been working in a project funded by the Swedish government’s national strategy to treat and prevent chronic diseases. We call the project “Dagens patient” (“Patient daily” in English) and you can read about it here. “Dagens patient” is based on my work around self-monitoring my Parkinson’s and we…… Continue reading Lena increased her daily “feel-well-time” from three to ten hours

At Quantified Self, I forget I have Parkinson’s

If I could only attend one conference a year, I know exactly which one I would choose: Quantified Self Europe. I have a very special relationship with the Quantified Self Europe conference in Amsterdam. In fact, I actually wrote my first two posts on this blog during the first QS Europe conference in November 2011…… Continue reading At Quantified Self, I forget I have Parkinson’s

Quantified Self Europe 2014

This week I am in Amsterdam for the third Quantified Self Europe conference. I am really  looking forward to seeing everybody again and be part of the amazing discussions that will happen. The program can be found here: http://quantifiedself.com/2014/05/2014-qs-europe-conference/ A video of my presentation: “How not to fall” can be found here: https://vimeo.com/101714345

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