Patient engagement is advocated widely across health systems worldwide, but what we mean by “engagement” differs greatly depending on context. Consider two scenarios: a patient working with her doctor to decide on a cancer treatment, and a patient representative helping design a cancer research trial. Both fall under “patient engagement,” yet they involve distinctly different roles and…… Continue reading A New Framework: Primary and Secondary Patient Engagement
Tag: patient involvement
This is why patient involvement is important for improving healthcare or “It seems inconvenient, but if you really want to, you can try”
(This blog post is also available in Swedish =>> here) Most people living with Parkinson’s disease take a lot of pills, multiple times a day. After having Parkinson’s for a while, it’s not uncommon to be prescribed 3-4 different types of medications to be taken in various combinations 4-6 times each day. One of my…… Continue reading This is why patient involvement is important for improving healthcare or “It seems inconvenient, but if you really want to, you can try”