Video from my thesis defence

Sara Riggare, PhD (Photo by Helena Conning)

https://youtu.be/aLw-ZL8_Xd0

https://youtu.be/aLw-ZL8_Xd0

On this day 10 years ago…

Sara Riggare, PhD (Photo by Helena Conning)

On this day 10 years ago, March 28th 2012, I was registered as a PhD student at Karolinska Institutet. My research plan, which was going to guide my work over the following years, was titled “Personal observations as a tool for improvements in chronic disease”. Reading through that plan today, on the 10 year anniversary,…… Continue reading On this day 10 years ago…

Webinar: PMD Alliance: “Disrupting the System”

On April 23 2021 I participated in a webinar organised be PMD Alliance titled “Disrupting the System: How Patients are Changing Research & Healthcare wHolistic™”. The webinar was presented in this way: “I see my neurologist twice a year, about half an hour every time. That’s one hour per year in healthcare for my Parkinson’s disease. During…… Continue reading Webinar: PMD Alliance: “Disrupting the System”

Draft version of the “spetspatient” framework

Authors: Sara Riggare, Therese Scott Duncan, Maria Hägglund. Introduction In the Merriam-Webster dictionary, ‘advocacy’ is defined as: “the act or process of supporting a cause or proposal”. The same source defines ‘activism’ as: “a doctrine or practice that emphasizes direct vigorous action especially in support of or opposition to one side of a controversial issue”.…… Continue reading Draft version of the “spetspatient” framework

Tracking of COVID-19

Edit on 16 December 2020: I am now almost back to “normal” (whatever normal is when living with a progressive illness…). Looking forward to relaxing over the holidays. Tracking has probably never been more talked about than right now, during an ongoing global pandemic. Having an interest in self-tracking, I have of course followed the…… Continue reading Tracking of COVID-19

Medverkan i podden: “Runt hörnet”

https://open.spotify.com/episode/1zAMsijHY4kVdR2VKCwiaP?si=Cwq_Fbk0Rr6HVq6B0AOHBQ https://open.spotify.com/episode/4HWiCCDQngX7SzAfsPF5x8?si=TtBo6wtxRESvtpf71HcsLA

What is a ‘spetspatient’?

Rapporten "Spetspatienter - en ny resurs för hälsa"

My non-Swedish speaking friends may have been wondering what I have been up to lately. And it’s a fair question, since I haven’t been blogging much in English for a while. For the last two years or so, I have been leading a project aiming to change the perception of patients, both among healthcare professionals…… Continue reading What is a ‘spetspatient’?

Spetspodden på Vitalis 2019

Under Vitaliskonferensen om ehälsa i Göteborg 2019 lanserade vi Spetspodden – en podcast av, med och om spetspatienter. Här finns länkar till de första avsnitten. https://open.spotify.com/episode/5Sz4Xuw8lSstmvvA2LY8jN?si=0BnqBArATryFyU8W5t3aIg https://open.spotify.com/episode/6BNESQ3oeQJHiSGoIrDSYx?si=_53IGJiWSFuCe92Hhvs7NQ https://open.spotify.com/episode/2lNAvgScXKI2UOCoaA2mqo?si=2-BgcpqKQtGIteUvOuZCvg https://open.spotify.com/episode/3iOUoS2vQgcKvF7PcxsVDL?si=WrInFGlDQN6TQv4MT6hXGQ https://open.spotify.com/episode/3BvGtgkI3JY1xHCfLXrKjj?si=Mhxfmm1jSwSme-RuX2eYTw https://open.spotify.com/episode/0a81A1J8nRaUNzpPFfUpbI?si=d_SofaUnSye4dPNEWeub-A https://open.spotify.com/episode/6WtZ39wAQCCrADHFpRiXTC?si=3iX4z00gRza6vXjDQCBjKg

Från rädd och osäker patient till stolt spetspatient!

Denna text har tidigare publicerats i rapporten “Spetspatienter – en ny resurs för hälsa”. Den fullständiga rapporten kan laddas ner här. För ungefär 34 år sedan, när jag var 13 år, så märkte jag för första gången att det var nåt som inte stämde med min kropp. Upprepade rörelser, som att borsta tänderna eller stampa takten till musik började…… Continue reading Från rädd och osäker patient till stolt spetspatient!

Stolt spetspatient!

Rapporten "Spetspatienter - en ny resurs för hälsa"

Igår var en stor dag: projektet “Spetspatienter – en ny resurs för hälsa” släppte en rapport med samma namn, se bilden. Spetspatient är ett ord som jag hittat på och i rapporten kan du läsa mer, se rapporten här.  Såhär står det på rapportens baksida: Spetspatienter – en ny resurs för hälsa Ordet spetspatient kom till som…… Continue reading Stolt spetspatient!

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