At Quantified Self, I forget I have Parkinson’s

If I could only attend one conference a year, I know exactly which one I would choose: Quantified Self Europe. I have a very special relationship with the Quantified Self Europe conference in Amsterdam. In fact, I actually wrote my first two posts on this blog during the first QS Europe conference in November 2011…… Continue reading At Quantified Self, I forget I have Parkinson’s

Quantified Self Europe 2014

This week I am in Amsterdam for the third Quantified Self Europe conference. I am really  looking forward to seeing everybody again and be part of the amazing discussions that will happen. The program can be found here: http://quantifiedself.com/2014/05/2014-qs-europe-conference/ A video of my presentation: “How not to fall” can be found here: https://vimeo.com/101714345

“The Patient Perspective” from The Journal of Parkinson’s Disease 20th March 2014

This is an article written by Jon Palfreman for The Journal of Parkinson’s disease, published on 20th March 2014. It is published here with the permission of the author. The original article can be found at: http://www.journalofparkinsonsdisease.com/JPD/The_Patient_Perspective.html. In October 1984, a thirteen-year-old girl called Sara sat in a small village hall in northern Sweden enjoying a…… Continue reading “The Patient Perspective” from The Journal of Parkinson’s Disease 20th March 2014

SVT 21 augusti 2013 – Därför loggar allt fler hela sina liv

“De loggar allt i sina liv, från löparrundan till sina hjärnvågor. Möt rörelsen Quantified Self.” http://www.svtplay.se/klipp/1408768/darfor-loggar-allt-fler-hela-sina-liv

Presentation at QSEU 2013

You can read about and watch the talk I gave at the conference Quantified Self Europe in Amsterdam in May 2013 below. http://quantifiedself.com/2013/06/caspar-addyman-and-sara-riggare-on-tracking-parkinsons/  https://vimeo.com/68600543

PD Quantified Challenge – end of day 3

Results from my first day of evaluating myself can be found in the graph below and the next one shows my control (a.k.a. hubby). I found the patterns over time, especially in the finger tapping fascinating. If the results from the first day are anything to go by, the dose-response curve of my medication is…… Continue reading PD Quantified Challenge – end of day 3

The PD challenge, day 3 – add an app or two

Hmmm… I have realized that the Wii balance exercise/monitoring doesn’t give me quite the information I need relating to fine movements and the Nintendo Wii is also difficult to bring to work. So, I have decided to add some new tests: I found two apps on the app store that looks promising: FastFingers (a tapping…… Continue reading The PD challenge, day 3 – add an app or two

PD-Wii Fit Plus Challenge – day 2

Day 2 of my challenge and I realized that the registering of the results has to be altered slightly: I will register the Wii Fit Age and Centre of Gravity (COG) before and after the exercises I perform. The difference today was surprisingly large, check the table here. I would guess that the balance game…… Continue reading PD-Wii Fit Plus Challenge – day 2

My PD-Wii Fit Plus Challenge

Today I am starting a new project: My PD-Wii Fit Plus Challenge. The idea is to investigate if a few minutes on the Wii Balance Board in the morning can affect the impact PD (Parkinson’s Disease) has on my life. I will attempt to jump onto the balance board every morning and perform a body…… Continue reading My PD-Wii Fit Plus Challenge

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