Here’s a video of my presentation of the research project Chronic Knowledge from the Global Conference on Person Centered Care in Gothenburg on 6 May 2026. Subtitles are available in English & Swedish.
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In July I was in Barcelona to attend the 6th World Parkinson Congress or WPC. As expected, it was a few very intense days with many impressions and interactions. One of my commitments was to speak in a morning plenary session. It was the start of day 2 of the conference and there were people sitting on most of the 1 750 chairs in the room. I was proud and honoured to be part of the impressive lineup.
The main title of the session was “Tracking Disease Progression in Parkinson’s: Why and How?” and it was chaired by neurologist and movement disorder specialist Cecilia Peralta from Argentina together with Linda K Olson who is a physician and person with Parkinson’s, as well as a triple amputee. You can read more about Linda on her website here, and in her captivating memoire “Gone: A Memoir of Love, Body, and Taking Back My Life”. Trust me, you do want to read more about her!
The first speaker was professor Bas Bloem from Radboud University in the Netherlands who did an excellent job outlining why we should track PD. Equally excellent were the presentations by professor David Standaert and professor Thilo van Eimeren covering blood and tissue-based tests and imaging to track PD.
A recording of my talk, with the title “To track or not to track” can be found below. It is filmed with a mobile phone so the audio is not perfect. I recommend turning on the captions (in English).
Kent Unruh:
Jasmine Sturr, Full version:
Excerpt: using nicotine vape for managing dyskinesias:
Under en helg i november 2015 var Stockholm platsen för ett nytt (för Sverige) och innovativt initiativ för träning för Parkinson. Narva boxningsklubb hade tillsammans med Parkinson Stockholm och mig bjudit in den portugisiska sjukgymnasten/fysioterapeuten Josefa Domingos för att erbjuda boxarna på Narva utbildning om Parkinsons sjukdom och dessutom prova-på träning för Parkinson Stockholms medlemmar. Det var en succé, som filmen nedan visar.
Nu letar vi efter sätt att kunna erbjuda regelbundna träningspass speciellt för personer med Parkinson, genom sponsring eller andra sätt. Om du har något förslag, kontakta mig via: contact@riggare.se.
On a weekend in November 2015, Stockholm was the scene for the start of a novel (for Sweden) concept for training for Parkinson’s: boxing training! The boxing club Narva had taken the initiative together with the Parkinson’s association of Stockholm and me to invite the Portuguese physical therapist Josefa Domingos to offer the boxers at Narva boxing club education in Parkinson’s disease and also offer trial sessions of boxing training to the members of Parkinson Stockholm. It was a huge success, see the film below.
We are now looking for ways to offer regular training sessions specialising in Parkinson through sponsorships or other means. If you have ideas or suggestions, please email me at contact@riggare.se.
For the last year or so I’ve been working in a project funded by the Swedish government’s national strategy to treat and prevent chronic diseases. We call the project “Dagens patient” (“Patient daily” in English) and you can read about it here. “Dagens patient” is based on my work around self-monitoring my Parkinson’s and we currently work with people with Parkinson’s and MS, exploring different aspects of self-monitoring together. One member of our Parkinson’s group has done some really interesting things and she talks about it in the video below. It is in Swedish but has English subtitles. Let me know what you think about it!
My week at the neurorehabilitation centre CNS in Portugal was fantastic and I can’t thank the physiotherapist Josefa and her colleagues enough for sharing their skills and encouragement. I also want to thank Jon for literally pushing me to accomplish more than I thought I could (see video below or link to video here at 1:25) and generally being a good sport.
You can read about and watch the talk I gave at the conference Quantified Self Europe in Amsterdam in May 2013 below.
http://quantifiedself.com/2013/06/caspar-addyman-and-sara-riggare-on-tracking-parkinsons/
