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Podcast in English

Webinar: PMD Alliance: “Disrupting the System”

On April 23 2021 I participated in a webinar organised be PMD Alliance titled “Disrupting the System: How Patients are Changing Research & Healthcare wHolistic™”. The webinar was presented in this way: “I see my neurologist twice a year, about half an hour every time. That’s one hour per year in healthcare for my Parkinson’s disease. During […]

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Presentations in English

Webinar: Chalmers Engineering Health

Presentation with Andreas Hellström: “Patient researchers and patient innovators – the missing link?”  link to video (our presentation starts at 2hrs57mins)

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In English

PhD trajectory update

I figured that an update on my PhD trajectory was in order so here goes:

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In English

For whose sake is research done – really?

I owe a lot to research. Thanks to an immense number of dedicated researchers, I have access to reasonably effective treatments for my Parkinson with (so far) manageable side effects. And of course we need more research, in all diseases and on all levels of health and healthcare. But, is the current process for how […]

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In English

Organising your own “health management system”

During the last few years, I have been thinking a lot about healthcare, which could be seen as strange, since I actually don’t use a lot of healthcare. If you’ve ever seen me present at a conference or watched a video of me, you have probably seen my “picture-with-all-the-dots”, so you know that I see […]

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In English

Going from researching patients to patients researchers

In September I will be attending one of my favourite conferences for the third time: Stanford Medicine X! It is the most patient-inclusive conference I have ever come across and always full of people generously sharing their stories relating to medicine and health. This year I will participate in a panel discussion titled “Going from […]