Draft version of the “spetspatient” framework

Authors: Sara Riggare, Therese Scott Duncan, Maria Hägglund. Introduction In the Merriam-Webster dictionary, ‘advocacy’ is defined as: “the act or process of supporting a cause or proposal”. The same source defines ‘activism’ as: “a doctrine or practice that emphasizes direct vigorous action especially in support of or opposition to one side of a controversial issue”.…… Continue reading Draft version of the “spetspatient” framework

Tracking of COVID-19

Edit on 16 December 2020: I am now almost back to “normal” (whatever normal is when living with a progressive illness…). Looking forward to relaxing over the holidays. Tracking has probably never been more talked about than right now, during an ongoing global pandemic. Having an interest in self-tracking, I have of course followed the…… Continue reading Tracking of COVID-19

Medverkan i podden: “Runt hörnet”

https://open.spotify.com/episode/1zAMsijHY4kVdR2VKCwiaP?si=Cwq_Fbk0Rr6HVq6B0AOHBQ https://open.spotify.com/episode/4HWiCCDQngX7SzAfsPF5x8?si=TtBo6wtxRESvtpf71HcsLA

Medverkan i podd om Alzheimer

Jag gästade Henrik Frenkels podd. Läs mer här. https://open.spotify.com/episode/2yqpvJRCKvgq4wtBwJiE68?si=NNWi-fwXQpGPk36SrhKpig

PhD trajectory update

I figured that an update on my PhD trajectory was in order so here goes: My application to defend my PhD thesis, ready to be handed in. First a recap: I started my PhD studies at Karolinska Institutet (KI) in 2012 and in June 2018 I handed in my application to defend my PhD thesis…… Continue reading PhD trajectory update

Rapporter om spetspatienter

Rapporten “Spetspatienter – en ny resurs för hälsa” kan laddas ner här: Bok_DP_150x225_Web-2Download Rapporten “Spetspatienter – en ny resurs för systemförbättring” kan laddas ner här: Rapport_spetspatienter_del2Download

Categorized as Böcker

Podcast: Never Delegate Understanding

Podcast hosted by Dr. Harlan Krumholz, cardiologist and researcher at Yale school of medicine. The series talks about ways that people can be more active in making health decisions and navigating the healthcare system. https://open.spotify.com/episode/0cb9bBLFc1k3O4dhpDW9Pw?si=Yr1aKAQNShCnw7OrG7dnGA

“But Sara…”

“But Sara, why would patients want to do research on themselves anyway? Isn’t it better if you all just give your data to a proper researcher?” I think that those who know me will agree that I am not often lost for words. However, when the question above was posed to me, I can definitely…… Continue reading “But Sara…”

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