Tracking of COVID-19

Edit on 16 December 2020: I am now almost back to “normal” (whatever normal is when living with a progressive illness…). Looking forward to relaxing over the holidays. Tracking has probably never been more talked about than right now, during an ongoing global pandemic. Having an interest in self-tracking, I have of course followed the…… Continue reading Tracking of COVID-19

Medverkan i podden: “Runt hörnet”

Medverkan i podd om Alzheimer

Jag gästade Henrik Frenkels podd. Läs mer här.

PhD trajectory update

I figured that an update on my PhD trajectory was in order so here goes: My application to defend my PhD thesis, ready to be handed in. First a recap: I started my PhD studies at Karolinska Institutet (KI) in 2012 and in June 2018 I handed in my application to defend my PhD thesis…… Continue reading PhD trajectory update

Podcast: Never Delegate Understanding

Podcast hosted by Dr. Harlan Krumholz, cardiologist and researcher at Yale school of medicine. The series talks about ways that people can be more active in making health decisions and navigating the healthcare system.

“But Sara…”

“But Sara, why would patients want to do research on themselves anyway? Isn’t it better if you all just give your data to a proper researcher?” I think that those who know me will agree that I am not often lost for words. However, when the question above was posed to me, I can definitely…… Continue reading “But Sara…”

Some key aspects of patient-centered research

It is a truth universally acknowledged that many patients no longer settle for contributing to medical research only as participants in research studies. Over the last decade or so, patients have increasingly made their voices heard in all nooks and crannies of the research process. Some of my favourite examples include: Tom Isaacs, who was…… Continue reading Some key aspects of patient-centered research

PatientsLikeMe och kampen om patienters hälsodata

Amerikanska PatientsLikeMe (PLM) är, enligt dem själva, världens största personliga hälsonätverk/ webbsajt. På deras sajt finns över 650 000 medlemmar som själva rapporterar in hälsodata om mer än 2 900 olika sjukdomar och/eller tillstånd. Sajten, liksom företaget med samma namn, föddes när Stephen Heywood, en amerikansk självlärd arkitekt, år 1998 vid 29 års ålder fick…… Continue reading PatientsLikeMe och kampen om patienters hälsodata

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